Massage Tales, MLD

Diet and Exercise is Not the Answer

Roberta* has been to several doctors. She is the patient that makes a doctor takes a big calming breath before walking in the room to consult with her. Roberta is relentless, opinionated, and she has articles from websites to go over with the doctor. Lots of them. These aren’t links that the doctor can look at later. Roberta has printed every one out on actual paper, and she puts them into the doctor’s hands. She will not be ignored.

Not this time. Not again.

Roberta woke up one morning and her trousers were all too small. Everything from her hips to her ankles ached, and even a gentle push on her leg was enough to make her gasp. Roberta has stopped wearing trousers. She has a closet full of dresses with loose, flowing skirts. She wears pantyhose, even in summer, because it calms the ache and it keeps her skin from chafing when her thighs rub together.

Roberta’s doctor wants to talk to her about diet and exercise. The doctor wonders if Roberta is being honest about her food intake and suggests that maybe Roberta is overeating due to stress.

And Roberta is stressed. She has been going to this doctor a few times a year for a couple of years with a similar complaint every time, and a handful of internet research. When Roberta got access to her medical records for the year, she sees that every visit, the doctor noted, “counseled about diet and exercise.”

Finally, Roberta broke through and got someone to say the diagnosis she suspected already: Roberta has lipedema.

According to the Lipedema Foundation:

Lipedema is a chronic condition that manifests as a symmetrical buildup of painful fat and swelling in

the arms and legs, sparing the hands and feet. It occurs almost exclusively in women and is poorly understood.

lipedema.org

Lipedema is a disorder of the fat cells, or adipocytes, which commonly affects women. The fat cells swell to an unusual size, and the disorder may be accompanied by lymphatic swelling of the extremities as well. Lipedema most commonly affects the legs and arms bilaterally. Women who have the disorder often have heavy or thick hips and thighs which do not change with diet and/or exercise. It is estimated that about 11% of adult women worldwide have lipedema.

The diagnosis of lipedema can be tricky, as Roberta learned. Many general practitioners may not have heard of the disorder, and their well-meaning advice can have the unintended effect of making a patient feel unheard, confused, and mistrustful. This is the state Roberta was in when I met her.

Many of the suggested treatments for lipedema have to do with managing two of the major symptoms: swelling and pain. Manual Lymphatic Drainage (MLD) is recommended for the management of both these symptoms. Roberta, and others, have come to me for MLD as part of lipedema management.

I find that I am also holding space for the stories that come with lipedema. The healthcare professionals who dismissed, and the ones who listened. The hours of solitary research and the daily life in a body that would not be how it was supposed to be. The aching relief to know that other people know what they are going through. The tearful gratitude for every healthcare professional who listened without judgement, said “I don’t know” when necessary, and helped when it was possible.

About 1 in 9 women may be living with lipedema in some form. Many of them don’t know, they just understand their bodies as problematic, aching, maybe even “deformed.” I urge all of you to have patience, and

believe deep in your soul that you are the expert on your body.

Keep reaching out — there are many healthcare professionals who will validate and support you.

I hope to be one of them.

*– Like all the clients mentioned on this blog, “Roberta” is a composite of several individuals. Identifying details have been changed.

Massage Tales, Modalities, Thoughts on the profession

Tired Hands

I arrived at my friend’s house after a full day of clients.  As I made the short drive from my office, I felt my hands grow more and more heavy on the steering wheel.  I felt the muscles in my forearms tingle with weakness and the tips of my fingers throbbed as if they were bruised.

  “Please,” I said, when I walked in the door, “could you just massage my hands for a minute?”

The day that led to that state of manual exhaustion (pun intended) was the kind of day I consciously tried to build my career to avoid.  A one-after-the-other stack of new clients unlikely to schedule repeat visits.  Lovely human beings who were perfectly healthy and who only got massages when someone else bought them a gift certificate, or when they were on vacation at a warm, tropical resort.  Deep in the muscles of my hands and arms, I felt the weariness of spending hours doing the kind of work I did not want.  My hands were tired, and I could not imagine massaging another human that day.

I suppose if I were a better businesslady, I could have found and mustered a way to talk to each of these people about the way I work (not aggressively), about the value of regular massage for all people, and about building a relationship with one massage therapist over time.  I suppose if I were more focused on filling my practice, I could have done all those things the brilliant people at Massage Business Blueprint suggest you do to retain clients.

Maybe I am fundamentally, constitutionally, and semi-aggressively a slacker when it comes to standard business building.  I would rather live simpler and with fewer new things so that I can have time and leisure to walk in the woods, or sit and write, or sit and think about writing.  I would rather end the day with calm, relaxed hands.  The better to capture ideas with, my dear.

As my friend massaged my hands, I felt the weariness drain out like water.  In its place, surrounding every filament, fiber and fascicle, I felt a sparkling readiness.  Rest would come soon, and when it did come, it would be deep and restorative.  It wasn’t the work that made me weary, it was the chaos.  I have dropped my marketing efforts and forgotten the niche I identified for myself.  Time to sit quietly again, and  put the business where my heart is.

heart-mussels-harmony-love-161002.jpegDear Ones, I am your resource in Louisville for manual lymphatic drainage.  This is a gentle, profoundly relaxing, medical massage technique that is used as part of the treatment for lymphedema, but also has many beneficial applications.  My clients have found relief from allergy-related sinus headaches, post-workout swelling and soreness, post-surgical swelling and general tension headaches.  Come in and talk to me about it, and experience it for yourself.